Showing posts with label disabled. Show all posts
Showing posts with label disabled. Show all posts

Friday, August 7, 2015

This is not the first time - it never is

This is not the first time – it never is

[CW/TW: confinement, imprisonment, abuse, murder of disabled people below and at links]  

This incident in Georgia is not the first time disabled children have been imprisoned in cages in our lovely US of A, by the way. It is in fact rather distressing to think about, but here it is in a California school, a home in Toledo, Ohio. Also in Michigan. The two Rockville, MD twins locked in a basement. And worldwide, in Australia and Greece and elsewhere.

I think it's time for people to think about this. That when a disabled person is abused in some fashion, my reaction is of course horror. But my reaction also is “this is not the first time this has happened.” There are constant patterns of abuse of disabled people. I know someone (disabled) who at age six was locked in the freezing basement of their school for hours. We, the disabled, get locked in basements and cages, more often than you may think.

That scratches the surface of the various abuses; it does not cover the whole iceberg. But I will tell you something that I hope is obvious…. If you're not one of the people who reacts like I do, with knowing that the type of abuse has happened before: Members of society actively abuse disabled people. Others turn a blind eye. Sometimes it takes the disabled person, like Melissa Stoddard, dying for anyone to act on the knowledge that they had been abused. Members of society also actively excuse our deaths

And most of the time, disabled people are not respected in death. Jillian McCabe threw her six-year-old son, London McCabe, off a bridge in November 2014. An NBC article titled “Jillian McCabe was ‘Overwhelmed’ Before Autistic Son’s Fatal Plunge,” came out, discussing the burdens she was facing. It makes no mention in the headline that she threw him off the bridge to kill him. It justifies her reaction to his 2011 diagnosis of autism. The article goes on to quote a psychologist, Dee Shepherd-Look, “a professor at California State University, Northridge, as saying, “quite frankly, I am surprised this doesn’t happen more often. These children are really unable to be in a reciprocal relationship and the moms don’t really experience the love that comes back from a child — the bonding is mitigated… That is one of the most difficult things for mothers,” followed by saying autistic children can be “rigid and oppositional.”1

Does that go into the iceberg a little for you?



1 Susan Donaldson James and Cassandra Vinograd, “Jillian McCabe was ‘Overwhelmed’ Before Autistic Son’s Fatal Plunge,” NBC News. November 5, 2014. www.nbcnews.com/health/mental-health/jillian-mccabe-was-overwhelmed-autistic-sons-fatal-plunge-n2411761 

Saturday, May 30, 2015

Typed Words, Loud Voices: Review

Review of Typed Words, Loud Voices (edited by Amy Sequenzia and Elizabeth J. Grace)

First, read "Why This Book" by Amy Sequenzia, and get the entire point of the book.

Because everyone has something to say" and "Everybody communicates. Words are beautiful. Our words have value." (pp. 10-11) Don't need much more than that to get your point across. Her introduction is short and concise, to the point. A bit of the personal story mixed into a question many people are undoubtedly asking, whether their voices count. Of course they do. 

Also read Elizabeth J. Grace's part of the introduction, iterating the point that that "scientific style testing is not a fitting a viable way to hear what we are saying about our own lives and experiences. An excellent way to understand us to really listen to what we have to say." (pg. 14) 


It's important to note that there is a disclaimer: not all these essays are about joy.  Not all these essays reflect disability in a positive light. This doesn't mean you should have pity or less acceptance for disabled people. These essays are published raw and full of their authors' truths.


So who is this book for? Who wrote this book? What visions are in this book? And would I recommend this book to you?

Who is this book for?

This book is for anyone who types. Anyone who types, part time or full time or wants to type, to know that they are not alone. This book is for the people who don't believe that autistic people have voices.

This book is for anyone who wants to learn more about autistic people's voices, typed or not.

Who wrote this book?

A global autistic and disabled community, people who type full or part time to get their messages across. Some authors are as young as six years old. They are autistic or disabled in a way that requires them to use alternative communication. They are girls, boys, men, women, people who identify outside the gender binary. They are in all grades of school or didn't attend traditional school.

What visions are in this book?

Correcting mistaken beliefs. This book has poetry in it (because autistic and disabled people can be poets), prose, memoir and vignettes, and other such writings.

The book's main goal is to correct the impression that people who use Facilitated Communication, or other types of communication, have no voices and no thoughts.

Sometimes, this book acknowledges that being disabled is hard. Being disabled is difficult in this world, especially one that places emphasis on spoken words. Mostly, the book illustrates the diversity of people who use alternative communication, and their lives that are still rich.

Would I recommend this book to you?


Yes, I would. It's written in a blend of poetry and prose and words that make your heart angry that some people would discount typed words. I would especially recommend it if you fall into a category of not believing disabled people's experiences and words.

Tuesday, May 12, 2015

Disparities in healthcare for the disabled

Health care disparities, boiled down

The issue of health care for disabled people is a heavily multi-pronged issue. In the United States (I know health care disparities are rampant and this is not a solely U.S.-centric topic, but I may follow up with more depending on sources that can be located), many disabled people live in poverty, making it difficult to access health care and health insurance. Barriers are not just economic, but also racial. Disabled people of color are more likely to experience health care barriers. Accessing health care friendly toward transgender people is also difficult.

I have watched people I know struggle with pain because doctors do not seem adequately prepared to interact with disabled people, and almost be denied lifesaving treatment due to disability and weight.* Individuals with disabilities also have symptoms chalked up to their disability. A study notes that “In general, PWD do not feel health care professionals are adequately prepared to treat them, and do not possess the skills to effectively communicate and develop trusting relationships with PWD.” The National Council on Disability reported in 2009 that “the absence of professional training on disability competency issues for health care practitioners is one of the most significant barriers that prevent people with disabilities from receiving appropriate and effective health care.” I have read the stories of many people here refusing to accommodate them, such as informing them they don't “look disabled enough,” or assuming that because they are disabled they have no communication.

In addition, the Disability Rights and Education Fund reported that “PWD of color or who are members of other minority groups are very likely to be encountering instances and forms of “double discrimination” that no single movement is effectively identifying or actively working to address.” For instance, this article covers issues of double-edged swords between hiding pain or openly suffering for black women with disabilities.

Further, in addition to not being prepared to communicate effectively, the economic barriers tend to be massive. In 2009, the CDC released a brief that in all states, people with disabilities cited economic barriers as reasons for not receiving adequate health care. In the same year, the National Council on Disability noted that people with disabilities were not considered a group with significant disparities in health care, which does not encourage action on the part of the government to improve healthcare for disabled people. Action is required on the part of the government to recognize disabled people as a group experiencing health care disparities.

While the federal government released a report in November 2010, Healthy People 2020, which “among its objectives for people with disabilities, Healthy People 2020 includes reducing unemployment, increasing the accessibility of new and retrofitted housing, other issues will need to be addressed by the federal government in order to provide these things, such as banning the subminimum wage for disabled people, as New Hampshire recently did so that employed disabled persons can receive more money, and a stronger focus on community integration, with increased funding for Home and Community-Based Settings.

It's not all on the government, of course. We have to work to end stigma here as well, especially among nondisabled peers. But funding and training for physicians and those in the medical field would go a long way.

*Amanda Baggs, mentioned in the poem, has changed hir name to Mel Baggs and uses sie/hir pronouns.

Thursday, February 12, 2015

The social model and when society refuses to admit its part

[Also on Tumblr]
I’m going to reiterate the social model and what this blog advocates for and what I advocate for. It has been said before. I will say it again. For the sake of this post, “society” will stand as the general conception  non-disabled people have of disability – or what they don’t think about in terms of disability.
In a society which disables us and refuses to admit they do so, it is not that we are not fighting hard enough for our rights, for our equity, that our demands are not strong enough – it is that society views disability itself as a malfunction of the human body or brain. It is a strong cultural bias and line of thought that has been around since there were cultures, and, though accentuated and perpetuated greatly by capitalism, is not solely a byproduct of capitalism. If capitalism ceased to exist, ableism would still exist. And there is no perfect world in which we can trust a government and economic system to fully benefit us.
In a society that would rather fix the individual who is not broken (i.e. all the money spent researching cures for autism and prenatal testing research) than spend a bit of extra effort to make things accessible and provide supports (like using alternative communication devices to spread the person’s word, ramps in the front of buildings rather than relegating wheelchair users to the back), we must continue to exist as an act of defiance.
Society does not consider the extra effort the person they are disabling has to put in to get someplace, do something, and perhaps, they are not able to get to where they are going from the failure to provide any meaningful supports or make it accessible, but protests the moment any disabled person brings it up (i.e. academic conferences sometimes both physically lacking accessibility for anyone with a mobility-based physical disability, and language barriers – this can be the classroom, too. Academic jargon is essentially shutting many disabled people out of conversations).
Society protests about the effort they would have to put in.
This is the social model of disability: we can have impairments or different ways of doing things, and society disables us by not allowing us the tools to complete tasks (and by not allowing us the right to human dignity at times).
Society has a lot to work for. 
(While we fight for those rights, please keep in mind that not everyone will be immediately receptive to the idea that they are part of a cultural bias. Please work with them to the extent you can.)

Sunday, February 8, 2015

Other Autistic People Taught Me What Autism Means (Video)


Oh look a video.

Transcript, though captioned (fairly) accurately:

Rough transcript, captions should be listed at some point on the video.  I wrote in my own and it’s setting the timings?

This is an address to parents and people who care for and assist autistic people.

I have been feeling *more* autistic lately, if that makes sense – just using echoes more, realizing scripts more, thinking about things I do. I mean, I flapped at a cat for five minutes the other day.

To other Autistic people…

I stim more, I am more open… and I that’s because I follow so many people on Tumblr and talk on Facebook a lot with people.

Being around other Autistic people is important.

Being around other Autistic people lets you know you can do things with them and also on your own, when situations permit. It gives you almost an internal permission to let go. When I started the k-pagination blog, I was like “Will only write activism posts and reblog activism posts. Serious stuff.” And now it’s just… I need the joy of being Autistic. I will write posts that might seem a bit silly. I will start tagging with the echoes I always had in my head and never used.

Being around other Autistic people is important.

If you’re a parent or caregiver, reading this, let your autistic kids and adults (if you have legal guardianship or something), be around other Autistic people. Don’t isolate them from neurodivergence. That in of itself can be as harmful as a physical seclusion room.

This is not my usual, long and flowing eloquent and bit detached activism. This is an autistic person asking for people to respect lived experiences. I was like your child.

I climbed trees, I ran around shrieking and screaming all the time, and even if I did now, it wouldn’t make me less than. I did a lot of things in those alarmist documentaries. I am worthy of dignity and autonomy. So are your kids and relatives, whether nonspeaking or speaking or need aides and what level of supports they need.

And other Autistic people are the ones who taught me self advocacy and activism. It was just a label before I met Autistic people I talk to and call friends and acquaintances and respect. Though psychiatrists and psychologists can be useful, other Autistic people taught me what autism means, not them.

And to Autistic people watching this, you have the right to be around other Autistic people and talk and share your experiences, and have validation.

Sunday, February 1, 2015

A response to “Penn ethicists call for the return of the mental asylum”

Originally posted on Tumblr (k-pagination.tumblr.com)

A response to “Penn ethicists call for the return of the mental asylum”

Adapted from Facebook.

Summary [tw mental institutions at link]: UPenn bioethicists are proposing for the return of a patient-controlled mental asylum that would help keep the mentally ill out of prisons and with a place to stay so they are not homeless.

In 1977, Judi Chamberlin, a former mental patient, wrote, “The whole experience of mental hospitalization promotes weakness and dependency. Not only are the lives of the patients controlled, but the patients are constantly told that such control is for their own good, which they are unable to see because of their mental illness. Patients become unable to trust their own judgment, become indecisive, overly submissive to authority, frightened of the outside world. The antitherapeutic nature of mental hospitalization has long been recognized.”
We need community supports. It has been known by mental patients who founded their own liberation movements and their own support groups. It was legally ruled as such for states in 1999 in Olmstead v. L.C., which mandated that states must provide community integration supports before institutions.

State-run or not, we should not be in institutions.

If the problem is that we are going into prisons and into the streets, then there are not enough community supports in place.

The principle of “charity” that said it would be more humane to house us in institutions to get us off the street is what caused the original burst of institutions. What makes anyone think this would be different?

The article says “He envisions asylums built in a campuslike environment with varying degrees of security. They would be “patient-centered and collaborative,” and “modeled on the principles of the recovery movement, which emphasizes patient autonomy to the extent that that’s possible.”

The first problem is that “varying degrees of security” - no one would be free of the institution, to come and go as they please. “Security” translates to “they only leave and go places when we tell them to.” Additionally, the “patient autonomy to the extent that that’s possible” part essentially leaves that in control of the “professionals” - the extent to which patients can make decisions becomes largely dominated by the professionals.

The second problem is places have already tried that and it failed because the staff ended up mostly controlling it, even if it started out perfectly “come and go as you please” (see: Fountain House). The division between those seen as “sick” and “needing help” and the “normal” and “helpers” tends to get very wide very quickly. It is also kind of a slippery slope thing where you can start a place with the best of intentions and it all goes wrong, and then more institutions will happen and we’ll be back in the 1940s, 50s, 60s, 70s before you know it.

Judi Chamberlin also wrote: “A tremendous gulf exists between patients and staff in mental institutions. Patients are seen as sick, untrustworthy, and needing constant supervision. Staff members are seen as competent, knowledgeable natural leaders.”
This is still largely the case with stigma against mental illness and disability. The stigma is too pervasive for that to even begin to work - with any level of “staff member.”

No amount of mental institutions will help the mentally ill in the long run. These places damage people’s self-worth. They create a sense that the person cannot return to the outside world, that the person is broken. No matter how altruistic the intentions, they do not work. At best, they trap people for significant periods of time in places with little to no freedom. At worst, they degrade into physical abuse, malnutrition, overcrowding, and injury. Best or worst, they depersonalize, dehumanize, and remove control from people.

Dressing While Disabled (And Agender)

#DressingWhileDisabled (And Agender)


**

I hop. And fall into a chair. My dyspraxia is not good for full body movements in contained areas. I try to tug on the socks. I have to go sit on my bed.

**

I have weak ankles, and I don't want to try wearing heels, I say.

Fair enough, the friend responds.

I do have weak ankles. I sprained each one twice before I was 12 years old, running around and climbing things like the autistic kids you see in the alarmist documentaries (well, because I'm autistic. I did things like that. Unsurprisingly, I was like a lot of the autistic kids you see in the alarmist documentaries or the parents insisting us activists are too high functioning to understand).

But I also don't say: I don't think I could balance. I think I'd fall. I'd embarrass myself.

**

Recently, I've undone enough of my internalized fear of dressing nicely or fashionably-ish because that's how the people who bullied me in middle school and high school dressed like, and also undone the notion that to be nonbinary and agender, you can't wear gendered clothes.

I used to say that, as I walked around in “guy” jeans.

I tried on a dress in Target yesterday, because it felt sensory friendly and floaty. I realized this after wearing a nightshirt for the first time.

**

But I lack the executive functioning to remember how to fashion myself appropriately. I fall down over my shoelaces because I lack the coordination to tie them effectively, or forget to even try. I cannot remember to go buy the clothes. It took an entire winter to realize I didn't have enough long pants, and that's why I needed to do laundry so often.

Which, by the way, is hard. Laundry is hard.

I emailed my mother. I need sweatpants. Can you take me to Target?

We went to Target and bought sweatpants.

**

Sometimes, it's not an Autistic thing. I have anxiety and various mood things. It can be hard to roll out of bed and put on clothes effectively, or brush my hair, or tie my shoes, as I bump into a chair and swear groggily.

**

I am Autistic, and dressing while disabled can involve so many steps I forget to do all of them.

I don't mind, to be honest.


Tuesday, December 23, 2014

Sexual, romantic and gender identities for disabled people

[TW: brief discussions of sexual assault and abuse of disabled people]
 
I. Personal Brief on the Matter of Gender, Sexuality, Romantic Orientation

I’ll start this off by first saying what people need to know: sexuality, gender identity, and romantic orientations are not all the same. Of the three, sexuality and romantic identity are often conflated, but may not always match.

I’ll also give a brief on myself. I’m pretty sure I’m demiromantic and demisexual for all gender identities. Any crush that I’ve had on a person without an emotional connection is an infatuation, one that I never even want to act on, ever. Any romantic interest, however, sprang up after friendship or feeling a strong emotional connection, even if we weren’t actually quite friends. Any sexual interest has come about the same way. It’s happened with cisgender men, cisgender women, and nonbinary people (including those who identify as androgyne, agender, neutrois, etc.) so far.
It’s been confusing in a society where people have sex without emotional connections all the time, so sometimes I kept assuming I would be like that too. I’m not. In other news, at least the “not straight” label I’ve realized since I was 17. I’ve been developing my concepts of sexuality, romantic identity, and gender identity since then, introspecting each time I learned something new. At 21, I identity as as demiromantic and demisexual toward all gender identities, and nonbinary and agender.

II. Fights for sexual and romantic orientation equality, gender identity equality are also disability rights.

It’s a multi-pronged issue, where
  • Disabled people are often not educated about gender, sexuality, sexual activity, and romantic orientation because it is assumed they will not understand it, need it, or ever experience anything;
  • Disabled people are often told their body is not their own, anyway;
  • Disabled people are often put in situations where it is harder for them to escape sexual abuse and abuse in general because of mobility issues (harder to physically leave), stigma against them (people do not believe them, or the perpetrator receives pity for bothering to interact with disabled person), internalized beliefs that their bodies are not their own, people not understanding their communication of the matter, being gaslighted into believing they are the problem, and other reasons;
  • Disabled people are encouraged to not have relationships where children could occur;
  • Disabled people are often used as scapegoats by the pro-choice movement, and often leaves out disabled people in accessibility and discussions. While the pro-choice movement is one I support, I am also disabled, and we should not be thrown under the bus.
  • Disabled people are often multiply marginalized through sexuality, gender identity, romantic orientation, and other intersections;
    and
  • Other people are told by society that disabled people are undesirable.
My mother did not assume that I would be automatically be devoid of a sex life and dating life in the future and spoke to me about various things relating to sex-education when I was a teenager. Her assumptions weren’t based on that people with asexuality don’t exist, it was more of the fact that just because I was autistic didn’t mean I wouldn’t ever. And aromantic and asexual people can have sex, also. I am fortunate, I suppose, that thus far no one has ever tried to be like “but you’re developmentally disabled, you can’t have a different sexuality/romantic orientation/gender identity!”

Which is a thing that happens to people with disabilities. It’s much more common for people with mental illnesses related to psychosis, however, to get thrown under the bus in the regard of gender identities. The lack of representation for them is concerning on several levels; people with depression and anxiety, though still stigmatized against, are considered more “mainstream” and “common”.
When people think of mental illnesses like depression and anxiety, you think chronic sadness and being worried (though it’s more complex than that), and when people think of ones related to psychosis, they think horror movies or someone being tied down in a mental hospital.

Consequently, the idea that these people date, have sex, have gender identities and sexualities and romantic orientations can shock people. Gender identities by these people are often questioned, and they may be told that it is invalid because they’re “so mentally ill” and must not not be able to figure out the difference between their bodies in reality and their mental state.

Disabled people also are assumed to be aromantic or asexual. When people say such things to you and you are not, just say, “Well, I’m not, but some of us are.” Aromantic and asexual are not bad words. Yes, the trope exists that we do not date, have sex, kiss, or experience attraction on romantic and sexual levels, but some of us do and some of us don’t, and neither one of those is due to the disability. It’s okay to say that you’re not if you’re not, but don’t do it in a way that harms another community.

Disabled people, especially women, are also victims of sexual assault. The Utah State University’s page on Sexual Assault and Anti-Violence Information has information on “Interpersonal Violence and Persons with Disabilities;” these stats include:
  • Among adults who are developmentally disabled, as many as 83% of the females and 32% of the males are the victims of sexual assault.
  • For individuals with psychiatric disabilities, the rate of violent criminal victimization including sexual assault was 2 times greater than in the general population (8.2% vs. 3.1%).
  • It has been estimated that 83% of women with a disability will be sexually assaulted in their lifetime.
III. Conclusion

It’s about time disabled people got included and remembered in dialogues, narratives, and discourses about gender identity, sexuality, romantic orientation, sexual abuse, reproductive issues other feminist issues, because we’re here. Disabled people have been raising their voices about it now for a while, from the pending non-profit Queerability to people writing articles for the Huffington Post, to individual people writing their stories.

Sunday, November 9, 2014

An Open Letter to Journalists, Bloggers, and People: A Violent Narrative

Autistic people and other disabled people are victims both of violence and of the myth-perpetuating articles and posts that crop up every time one of us is killed or abused.

It’s about “not enough services.”

It’s that the disabled person was “violent.”

The disabled person was “burdensome.”

The disabled person was [tw: murder of Nancy Fitzmaurice] “suffering too much to live.”

I am always disturbed by the ways in which the abuse and murders are justified. I want to read articles without being unsurprised by the fact that we have, yet again, been called burdens. I want to be able to read articles and be surprised if that happens, to have it not be the norm.

The deaths of the disabled have never been about us. Even in death, we are rejected sympathy and mourning. We (activists) should not have to spend all our energy trying to convince people that our lives are, in fact, worth as much as the non-disabled lives and defending our dead and abused. We should be able to spend our energy on just making disabled lives better, on helping each other through life, regardless of whatever we do in the traditional, societal sense of productivity.

My friend wrote that:
“London McCabe was a wanted child.
If you are a blogger or journalist telling the story, know that much.  Get that right.  Even if no one in his biological family wanted this boy, the autistic community did.  We wanted to enjoy sharing life and our affection with him. We wanted to help him grow into the best and happiest person he could be and have a wonderful life…”
The stories do not focus on this.

The stories that say [tw: ableism] “Oregon autism death raises awareness of how to help overwhelmed families” are what happen. The stories say that being overwhelmed makes it more acceptable to kill disabled people; the stories say that if we don’t get more services for these families, the children are at risk. And they are, but not because they deserve it or are “burdensome,” but because people buy into the fact that our “burdensome” existence can in fact justify the abuse, deaths and murders.

With every contribution to the narrative that lack of services make it acceptable, with every post that forces us to defend the dead we are trying to mourn, with every excuse thrown out to try and downplay what would be a horrific act if done to a non-disabled person, [tw: list of murdered disabled people] the disability community is put more and more at risk.

We are asking for your acceptance. We have your awareness of how “burdensome” we must be. Change the narrative into one not of awareness, but of acceptance of us as people.

Friday, November 7, 2014

Helping Each Other Cope

Helping Each Other Cope

I feel like we also need to talk about what else we can do when this happens, when we lose Autistic or other disabled people to violence, besides just talking about it and writing about it and letting everyone know what happened and that it is not okay and we should all mourn the loss.

We should do all of those things, but as I’m seeing many, many posts about what happened, I’m seeing little about what we can do to help each other cope.

I had a bad day yesterday. I do not usually post about bad days publicly. But it was a bad day; I was upset about London McCabe, to the point of blanking out and having severe anxiety and alternating between anger and feeling extremely sad and distressed. Today was better, but I have some things to work through, and am taking necessary steps to help address it.

These events remind us of our own mortality, and of the fact that people think that it can be excusable, and of the fact that we lost someone at all who deserved to live regardless of what they could have done by traditional measures. I am pretty sure none of us actively forget about these things, but when it happens, the aftermath can bring those reminders to intense, almost or actually unbearable levels.

I will be trying to work on ways to help us cope in these aftermaths, perhaps a group area online, a large master post of resources, a list of people who are willing to talk to someone about their feelings. These ideas will have to be finessed and worked on, of course. Any other suggestions will be welcome. Comment here, message at k-pagination on Tumblr, or email me if
  • you have suggestions for masterposts I can compile
  • suggestions for a group forum that would be manageable and not out of control
  • feel like you would be able to provide support for people via Skype or other forms of instant message, including Facebook.
—— (This would mean your information in these regards would  have to be available for those who ask. Potentially, I feel, I would have a list and then message the people on the list to see how they are feeling/if they are able to talk to someone, so the information wouldn’t just be everywhere on the internet.) ——
  • You know of any open, free and accessible counseling places available physically or online that have actively demonstrated they are not ableist, sexist, racist, queerphobic, transphobic, bigoted, etc. and that they would not undermine the purpose/identity of the person seeking assistance and counseling.
You can also email me at silverbrook.aka.silva@gmail.com or message me at https://www.facebook.com/pages/Paginated-Thoughts/742852935779780

Monday, September 29, 2014

Maybe, in Poetry... Reflections on My Autistic Pride Poetry

TW: Abuse, murder, electric shock mention, links to things on "quiet hands"

I successfully read my poems, "Writing out Infinity: Autistic Pride" and (tw: ableism, violence, murder mentions) "Power Structures" at the 100 Thousand Poets for Change event on Saturday, September 27.

 I received an email later telling me that my poems had touched their heart. It made the fear of standing up in front of people with that microphone, staring at the papers in my hands, trying to put conviction in my voice because I am the authority standing up there on the stage and I know being Autistic is not shameful and I know all the things that have been done to us, worth it. 

I wasn't sure they would understand what I meant by neurodiversity or by infinity, or or the description of stims. I wasn't sure people would understand what I meant by people being afraid to move their hands, or people being afraid to be Autistic in a world that sympathizes with our abusers and murderers, and the innumerable counts of abuse done to us through electric shock and aversive therapies and forced normalization and telling people they can't move their hands and they cut our vocal cords because we scream too much. 

Maybe, in poetry, the graphic or specific details don't need to always be there. Maybe, in poetry, the conviction with which you say it will tell them it's true, will tell them they should look into it, will tell them to presume competence and believe me and tell them that we are not suffering burdens 

--and that we can love ourselves just as much as any non-disabled person.